Addressing the Data Deficit: How Gaps in Disability Data Affect Healthcare Equity

Around 1.3 billion people globally live with significant disabilities, facing more obstacles to healthcare than others. McKinsey’s latest report, in partnership with The Missing Billion, highlights these data deficiencies and suggests ways to use generative AI to improve data collection and usage. 

The McKinsey Health Institute (MHI) has collaborated with The Missing Billion to address the disability data challenges and promote inclusive health. Their recent report, released in conjunction with the end of Disability Pride Month, provides a detailed analysis of current data maturity levels by country. It also explains how generative AI can bridge the data gap and suggests actionable steps for stakeholders to improve data collection and usage.

Approximately 1.3 billion people, or 16% of the global population, live with significant disabilities. These individuals often encounter more barriers to accessing healthcare compared to those without disabilities.  Without comprehensive and accurate data, it is challenging to identify and address the unique needs of this group effectively.

Insights and Resources on Disability Inclusion

• The Missing Billion: Lack of Disability Data Impedes Healthcare Equity
  Many people with disabilities are not counted in health data, which makes it hard to address their specific needs. This lack of information means that healthcare services might not be designed to help those with disabilities properly, leading to unequal care and gaps in health support.
• Bridging Another Digital Divide: Accessibility for Blind and Low-Vision Consumers
  Blind and low-vision consumers often face barriers when using digital services and devices. Making websites and apps accessible to them is essential for ensuring they can access information and services just like anyone else, reducing the digital divide.
• A Flight Plan for Everyone
  Air travel should be inclusive and accessible to everyone, including people with disabilities. By designing planes, airports, and services that accommodate all needs, the travel experience can be made easier and more enjoyable for everyone.
• ‘There Is Only One World, and It Must Have Room for All of Us’
  This statement emphasises that our world should be inclusive and welcoming to everyone, regardless of differences. It highlights the need for creating spaces and opportunities where everyone can participate and thrive together.
• Author Talks: It’s Not About Me, Is It?
  In this discussion, authors explore the idea that their work should focus on larger themes and issues, rather than on personal gain. It’s about considering the impact of their writing on readers and society, rather than self-promotion.
• Women in the Workplace 2023
  This report examines the status of women in the workforce today, highlighting progress made and ongoing challenges. It looks at issues like pay equality, career advancement, and work-life balance, aiming to improve conditions for women at work.
• The Elusive Inclusive Workplace
  Creating a truly inclusive workplace remains a challenge for many organisations. It involves not just hiring diverse staff but also fostering a culture where everyone feels valued and supported, regardless of their background or identity.

About McKinsey Health Institute

The McKinsey Health Institute (MHI) is a non-profit part of McKinsey & Company, focused on improving global health and quality of life. MHI believes that in the next decade, we can add up to 45 billion extra years of good health worldwide. 

Their goal is to drive significant changes by working with different sectors, regions, and communities. MHI aims to solve major health issues, promote new ideas, and address health inequalities. With a commitment to evidence-based research and strategic partnerships, MHI works to accelerate progress in health by leveraging insights from across the firm and beyond. Its initiatives include advancing health data collection, enhancing healthcare access, and supporting global health improvements.